像牛皮癣这样的可见疾病生活会影响您的身体和情感健康。
虽然正确的牛皮癣治疗计划可以帮助您控制身体症状,但与他人联系的情况可以帮助您促进心理和情感支持。该支持网络还可以成为如何解决牛皮癣的任何生活的宝贵建议和信息来源。
Not sure where to start your search for psoriasis support? Here are six ways to connect with others who are living with psoriasis.
在您所在地区找到当地的支持小组是与您居住的牛皮癣的其他人建立联系的好方法。这些小组是一个人亲自见面以分享自己的经验以及牛皮癣管理技巧的空间。
当地支持小组通常由促进者或治疗师经营。您的皮肤科医生也许可以将您推荐给您附近的面对面支持小组。
Online support groups give you the chance to easily interact with others who have psoriasis. It can be done from your home without arranging to meet face-to-face. This is comforting for some who wish to remain somewhat anonymous or are looking for instant support.
Online support groups also help you overcome geographic hurdles by allowing you to connect with others who have psoriasis no matter where you live.
这国家牛皮癣基金会recommends signing up with their partner,Kopa for Psoriasis, for online community support. The银屑病community forum由Inspire运行是另一种选择。
An alternative to group support is talking one-on-one with someone who shares the experience of living with psoriasis. A
如果您正在寻找这种类型的个人联系,国家牛皮癣基金会有一个一对一program that matches up people with psoriasis with a mentor. With One to One, you can sign up to receive support, or you can apply to become a mentor through the program.
Many people who are living with psoriasis share their experiences on social media platforms like Instagram or TikTok.
您可以通过以下主题标签进行这些帖子,例如#psoriasis,#psoriasiswarrior和#psoriasisawareness。通过此过程,您可以与分享您经验的其他追随者建立联系。
社交媒体是学习牛皮癣社区中发生的事情的另一种方法,无论您是附近还是世界其他地区。
这psoriasis community is large and advocates often hold awareness or fundraising events.
这国家牛皮癣基金会在其网站上有这些类型的事件的目录。您可以简单地作为客人参加这些活动,自愿提供帮助或参加筹款活动。在此过程中,您将认识其他也患有牛皮癣的人。
A support group, either in-person or online, should provide a sense of community where you know you’re not alone with psoriasis. It can provide emotional support as well as tried-and-true advice for managing psoriasis from people who have been there.
并非每个支持小组都会最适合您。在您注册之前,请考虑提出这些问题以确定它是否适合您:
- 谁促进了支持小组?
- Do I have to pay a fee?
- If the group is online, is my private information protected?
- 小组多久见一次?
Perhaps the most important question to ask yourself is whether the group feels right for you.
例如,问问自己,您是否愿意参加由患有这种情况的人经营的牛皮癣的支持小组。如果没有,您可能更喜欢搜索由心理健康专业人员经营的小组。
支持网络对于任何有牛皮癣的人来说都是宝贵的资源,无论是什么来源。
Consider participating in support groups in a way that makes you feel comfortable. At first, that may mean just listening to others and helping them through their experience. When you’re ready, you may be more willing to open up more about your own life with psoriasis.