作为患有非小细胞肺癌(NSCLC)的人的护理人员,您扮演着亲人一生中最重要的角色之一。长期以来,您在情感上不仅在那里,而且您作为照顾者的角色也使您负责日常任务。最重要的是,您仍然需要设法照顾好自己。
Taking in all of your newfound responsibilities can be stressful at first. Identifying the major steps in caregiving can help keep you organized.
Caring for someone with NSCLC often entails being involved with cancer treatment. This can include:
- 驾驶您所爱的人参加他们的约会
- accompanying your loved one when they meet with
医生,护士和实验室技术人员 - 确保您所爱的人采取任何推荐
并处方药 - helping your loved one quit smoking if they
抽烟
You’ll also need to stay on top of your loved one’s symptoms for signs of further progression. Examples include breathing difficulties, coughing up blood, and unintentional weight loss.
As NSCLC progresses, day-to-day tasks may become increasingly challenging for your loved one. You might need to help them eat, bathe, and get dressed. They may also need assistance going to the bathroom and walking around.
The key is to let your loved one know that you’re there to help when they ask you to. Don’t assume that a cancer diagnosis automatically means your loved one has lost all independence. This can increase their feelings of depression and low self-worth.
癌症为您和您所爱的人都创造了情感过山车。NSCLC可能尤其如此,因为观点通常是不可预测的。您所爱的人可能会享受起伏。他们甚至可能变得沮丧。
您作为照顾者的角色不一定是试图振作您所爱的人或再次使他们“快乐”。相反,您可以通过无判断而提供支持。
It’s also helpful to encourage as much socialization as possible. Take your loved one out on walks. Encourage them to get together with their friends if they feel up to it. If your loved one is more comfortable indoors, offer to arrange a small get-together at home. Over time, your loved one may experience a boost in their mood. Plus, you may also benefit from being around other people too.
除了您将为您提供的日常任务外,您所爱的人可能还需要您在财务等更广泛的任务中为他们提供帮助。这不仅包括货币管理,还计划可能生命终止护理。
Depending on the stage of NSCLC your loved one is at, they may no longer be able to make decisions on their own. You may need to consult with both a financial advisor and an attorney for help.
Caregiving is a great sacrifice, and it’s easy to get caught up in making sure all of your loved one’s needs are met. You may even end up neglecting your own needs. You might skip meals from time to time, neglect your own medical care, or even withdraw from activities you once enjoyed because you don’t have enough time.
俗话说,除非您首先照顾自己,否则您无法照顾别人。忽略自己的需求不仅会使您处于不利地位,而且会影响您的护理能力。
您可以使用以下一些目标投资一些自我保健:
- Set a
timer for your own meals.This ensures that you won’t forget to eat. - 接受
朋友和家人的额外帮助。While your friends or family may
not know your loved one as well as you, there are tasks that you can delegate,
例如烹饪,清洁和杂货店购物。看似委派
minute tasks can free up more time and stress than you might realize. - 连接
每天都有一个朋友或家人。You may not have time for a lunch
date, but a simple text exchange, phone call, or email can help you keep in
触摸同时还可以增强您的心情。 - 锻炼
daily.即使步行不远或瑜伽伸展也可能有所作为。 - 创造
your own space.This can be a room of your own to read and relax in, or
even a portion of a larger space in your home that you can call your own.
Picture this space as your own personal retreat that you can do whatever you’d
像在。
While support groups are commonly discussed as therapeutic options for those with NSCLC, there are options available for caregivers too. You may find it helpful to connect with other caregivers who are going through similar experiences. These connections can be made in online groups, as well as traditional in-person meetings. You may even find one-on-one support with a therapist helpful. The key is to make sure your voice is heard and that your struggles are validated.