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我的MS诊断让我沿着奇迹'治愈Alls的兔子洞

Real Talk

May 27, 2021

Content created for the Bezzy community and sponsored by our partners.学到更多

byDearbhla Crosse

•••••

Heidi Moawad,M.D.

Medically Reviewed

•••••

•••••

byDearbhla Crosse

•••••

Heidi Moawad,M.D.

Medically Reviewed

•••••

•••••

虚假希望的现代供应商是老年人的蛇油商人。

生活在慢性病条件下意味着总人们希望有希望的固化 - 所有人 - 传统的补救措施重新包装为真实的奇迹。

伴有多发性硬化症(MS)诊断的悲伤让我沿着健康网站的兔子洞螺旋下来。

Ridding myself of illness became almost nihilistic. The more I tried, the sicker I became, as stress and cortisol gripped my body. The pressure to achieve “wellness” inevitably led to a massive relapse, which resulted in multiple trips to the emergency department.

MS是一种影响中枢神经系统的慢性神经疾病,主要被诊断为20多岁及30岁的女性。我的免疫系统正在过度驱动,攻击我神经的保护层。

这可能导致从视神经炎到移动性问题的症状。

In my case, muscle spasms, peripheral dysesthesia, and chronic fatigue meant I was put on vats of steroids, which was like being darted with elephant tranquilizer. Steroids gave me the appetite of a baby dinosaur, as well as moon face.

I was devastated.

尽管我的最佳努力与自然疗法,消除饮食等补充剂,但我不奇迹般地愈合。我尝试过CBD,攻击冥想,酊剂和营养学家 - 没有一个治愈我。也不是芹菜汁。

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互联网经常出售假希望

虚假希望的现代供应商是老年人的蛇油商人。他们掌握了人们绝望的脆弱性,让人感觉更好,沿途赚钱。

自腻的健康大师,如卖芹菜汁将治愈自身免疫疾病的神话,可能会破坏。当他们在Instagram上有数百万个追随者,没有医学资格,并促进没有科学支持的信息时,这尤其如此。

当然,芹菜汁对你并不糟糕。它包含许多必需的维生素和矿物质 - 但它不会治愈我的MS。

在这个旅程中,我也读了很多关于那些有MS的人,他说他们通过饮食,积极思考和生活方式改变来治愈自己。

While it is incredible that it has worked for them, I believe a lot of illness “inspo” stories ended up being quite detrimental to my mental health.

There was an expectation that if I did everything they were doing, I would be cured. When I wasn’t, I felt like a failure.

如果我在放纵任何类型后的一天有症状,我会惩罚自己。我越来越焦虑。懒惰或弱势的推定,如果只有我努力变得更好,我就不会在这种情况下。

慢性神经疾病不像那样工作。

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There is no one-size-fits-all solution

I now know that managing a chronic condition takes trial and error. One size doesn’t fit all and what works for one person may not work for another.

Being your own advocate is so important. Knowing your limits and what works for you is crucial. It takes patience and time, something a lot of wellness “gurus” don’t tell you.

I spent the better part of a year trying to figure out what I had done wrong. It was like prodding an open wound, raw and fruitless. Ultimately, I had to forgive myself for being sick and realize that I am not to blame for my condition.

I think with any diagnosis, you go through the stages of grief, which eventually leads to acceptance.

也许深深潜入治疗世界的世界是这种治疗过程的一部分,但在变得过于消费时存在危险。

I do believe the body has an incredible ability to heal itself on many levels, but MS is, ultimately, an incurable disease.

We need a more holistic approach

尽管生活在令人惊叹的医疗收益时代,但误导在线鼓励人们拒绝科学并寻求“自然”替代方案。

另一方面,许多医生的营养诺里居民区上空dge is fairly rudimentary, favoring medication as the only solution to most ailments. However, poor nutrition is a huge component of disease, and lifestyle is a主要影响者关于健康成果,特别是对我们的慢性病的人。

Yet, I was never asked about my diet or lifestyle. I was simply told to stay on my medication, which was largely unhelpful.

我发现了以下情况Overcoming MS diet, which is loosely based on the Mediterranean diet, helps with my symptoms. It encompasses the basic tenets of well-being: Don’t eat processed foods. Don’t smoke. Eliminate stress. Eat the rainbow. Spend time outdoors. Exercise, meditate, love, laugh, live.

It’s evidence based and doesn’t claim to offer a cure.

Doctors should offer a more holistic approach to MS, so that it doesn’t force those newly diagnosed down the wellness trap, forking out hundreds of dollars trying to get better or delving into fads that ultimately aren’t going to help us in the long run.

这并不是说替代医学不好。由于Charlatans捕获了人们的漏洞,通常有一个耻辱互补疗法,如Reiki,Reflexology和针灸等互补疗法。然而,这些疗法沉浸在传统中,我发现他们真的有益。

我想我们需要平衡。纳入现代医学,良好的营养和健康的互补疗法,不会伤害你是改善一般福祉的最佳方式。

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连接的力量

我的诊断意味着对多年的莫名其妙的症状得到答案。虽然我希望我没有必要通过我的经验,但最终,旅程导致了更多的联系。

Many people choose not to disclose that they have MS. For me, sharing my thoughts, worries, and hopes was cathartic.

我相信人类联系的力量。所以叫最古老的人口的蓝色区域不仅与健康的饮食相关联,而是与他人的关系和接触。

当你在地球诊断后,你发现你的真正的朋友筛选了你破碎的寿命:那些支持你的人,谁花了时间了解你所经历的内容。那些知道他们永远不会完全理解的人,但无论如何。

它可能是一个孤独的旅程,建立自己备份需要时间,但是一旦你拥有,生活是无限的更有意义,关系更深,每一切成功都是更甜蜜的。

这篇文章最初出现在2021年5月27日在Bezzy的姐姐网站上,雷竞技app官网。Last medically reviewed on May 27, 2021

3 Sources


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关于作者

Dearbhla Crosse

Dearbhla Crosse是一位合格的小学老师,插画家和位于爱尔兰的自由作家。她作为一名记者和欧洲,亚洲和中东的基于权利组织的沟通。你可以找到她Twitter

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