如果您刚刚接受了溃疡性结肠炎(UC)诊断,您可能有很多问题。即使您与UC一起生活了多年,您也知道您的管理计划可以随着时间的推移而变化。
这就是为什么当您想要了解更多信息时,可以获得资源。
Books about UC and inflammatory bowel disease (IBD) can be great references about the conditions and treatment options.
They can offer tips and advice on how to eat for UC and manage your mental health while living with this condition — and they can remind you that you’re not alone.
出于几个原因选择此列表中的书籍。
Every book is written by someone with personal or professional experience with IBD — and sometimes both!
Some cover a variety of UC questions and topics, and some deal with more specific concerns, including diet and emotional health.
我们已经包括分享个人经验的人,以及有几个标题,以及有IBD的儿童和青少年。
重要的是要记住,有时公布的信息,特别是关于治疗的信息,可能会过时 - 特别是对于近年来的植物等病症。
While the majority of the information in these books remains timely and helpful, you can visit theCrohn和Colitis基金会网站for the most up-to-date information regarding treatments and gut health research.
当然,与医疗保健专业人员谈论您的个人情况,以确定您的最佳治疗方案。
If you’ve just received a diagnosis of UC, you may be feeling overwhelmed. It can be hard to know where to start when first learning to live with this condition.
Here are a few books that cover a variety of topics, including symptoms, testing, treatment options, diet, surgery, and life with IBD.
“Crohn’s & Colitis: Understanding & Managing IBD’
By Dr. A. Hillary Steinhart
这book几乎涵盖了与UC一起了解的一切。
It’s arranged in sections — on topics like surgery, medications, diet, mental health, and living well with UC — so you can easily find what you’re looking for.
它包括有用的图表,案例研究和常见问题的答案。此外,它很容易阅读,用医疗术语清楚地解释和图表和图片来帮助理解。
“Crohn’s Disease and Ulcerative Colitis: Everything You Need To Know – The Complete Practical Guide’
由弗雷德萨比尔,MD
这isn’t a newbook,但值得阅读。
Saibil, an expert on IBD, comprehensively covers the facts, tips, and information about treatment, diet, lifestyle, and self-management that people who recently received a UC diagnosis will want to have at their fingertips.
While the medication and treatment information may not be up-to-date with what is currently available, many of the other topics discussed in this book are evergreen. So, it can be helpful to both adults and children living with UC.
'克罗恩和结肠炎的假人'
By Tauseef Ali, MD
Like any of the books in the “For Dummies” series,this one充满了易于理解的信息。每一章都在开始时明确概述,因此您将确切地知道您的问题答案。
It has great detail on topics such as testing, diagnosis, treatments, diet, travel, and work. Plus, definitions and helpful tips can be found throughout the book.
患有慢性病的慢性条件,例如UC可以影响您的心理健康。不可预测性和未知数可能很难应付。
Here are a few books that focus on taking care of your emotional health as part of your UC care plan.
‘IBD and the Gut-Brain Connection: A Patient’s and Carer’s Guide to Taming Crohn’s Disease and Ulcerative Colitis’
By Dr. Antonina Mikocka-Walus
Mikocka-Walus已经研究了肠脑连接了20多年。她也享受了IBD。
这book探讨IBD如何影响您的心理健康。它提供了有关如何处理工作,家庭和社交生活的指导,同时管理IBD。
It also offers advice and strategies for dealing with the emotional effects of IBD.
'用慢性病生活健康的生活'
By Kate Lorig, DrPH, et al.
这bookwas originally based on a Stanford research study, but the latest edition also includes input from medical professionals and people who are living with chronic conditions.
It explores how people with chronic conditions can improve their health and live their lives to the fullest.
Any chronic disease can affect mood, energy, sleep, and overall feelings of well-being. This book and a related program of workshops and support groups offer strategies to help you feel more in control of your health and your life.
You can find out if there are workshops offered in your area by searchinghere, under “Chronic Disease Self-Management Program.” There’s also a网站associated with this book that has plenty of resources and links to help you.
Food choices are important when you have UC. These books provide details on how food choices can help you manage symptoms of UC. It’s a good idea to work with a dietitian if you need support when making dietary changes.
“Crohn’s and Colitis Diet Guide’
By Dr. A. Hillary Steinhart and Julie Cepo, RD
这bookprovides tons of information on eating to manage UC. It’s co-written by a doctor and a dietitian who have lots of experience treating people with IBD.
It offers tips on foods to include or avoid to help manage certain symptoms. It also discusses nutrients that may be hard to get when you have IBD and how to boost your intake of them.
超过一半的书是食谱,每个人都包含有关最适合的膳食需求的信息,包括较低的纤维,低脂肪,更高的蛋白质,素食和更多。
The recipes also feature tips for food preparation and nutritional analysis.
‘Breaking the Vicious Cycle: Intestinal Health Through Diet’
By Elaine Gottschall, MSc
这bookhas been around for a while, but it’s still relevant. It outlines an eating plan, called the specific carbohydrate diet (SCD).
The book claims this plan has helped thousands of people around the world with digestive and other chronic health issues. Though it’s hard to verify this data, a2015 studyof 50 people following this diet backs up these findings.
Following this diet may help change the bacteria colonies in your gut and may improve UC and IBD symptoms.
饮食消除了所有谷物,糖,一些蔬菜,大豆和含乳糖的乳制品。您可以吃的食物包括一些蔬菜,水果,坚果,坚果的面粉,肉类,黄油,油,鸡蛋和低乳糖乳制品。
如果您决定尝试它,请确保您有良好的支持,营养师有与SCD的经验。弄清楚如何在饮食后获得如何获得营养成分的正确平衡。
Sometimes, knowing that other people have had similar experiences can provide comfort. That’s part of the power of support groups.
Everyone’s story will be unique but there will be shared experiences and challenges. It can be helpful to know that you’re not alone.
‘What Doesn’t Kill You: A Life with Chronic Illness – Lessons from a Body in Revolt’
由Tessa Miller.
Tessa Miller was just living her life, getting started in her career. Out of nowhere, she began having severe digestive symptoms. Eventually, she was diagnosed with Crohn’s disease.
In her故事, she shares the process of (finally) getting answers and accepting her new life.
'溃疡性结肠炎:当底部掉出你的世界'
By Chris Goodchild
Chris Goodchild was in his 20s and simply loving his life. Getting diagnosed with a chronic disease was the last thing on his mind.
Suddenly, strange and painful symptoms took over. Soon, he was in the hospital, receiving a UC diagnosis. This is his故事学会应对uc并再次感受到希望。
If you’re the caregiver of a child or teen with IBD, there are some special things to consider. And books designed specifically for children and teens can help them better understand their IBD and learn how to cope.
‘Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving’
By Hepatology and Nutrition North American Society for Pediatric Gastroenterology, et al.
很自然地担心你的孩子如何应对学校和运动的东西,特别是当他们与IBD生活时。
这bookanswers questions about managing your child’s UC. Written by a team of UC experts who work with children and their families, it provides details on treatments and medications used for children and teens.
The tone is knowledgeable and empathetic, and the information is presented clearly. It answers many questions parents and caregivers have about caring for their child.
‘Comfort Food for an Uncomfortable Stomach: By a Kid for Kids’
By Josh Cohen
John Cohen was diagnosed with UC in his early teens. It was tough for him to find foods that worked for him. He started to realize that many foods he ate made his symptoms worse.
Through a lot of trial and error, he developed new versions of his favorite foods, which he shares here. He’s donating proceeds from the sale of thisbookto his local chapter of the Crohn’s & Colitis Foundation.
'IBD&ME活动书'
By the Crohn’s & Colitis Foundation of America
这是一个伟大的free resourceavailable on the Crohn’s & Colitis Foundation website. It’s targeted to kids and teens who are navigating the world of IBD.
它包括关于如何与朋友和教师讨论IBD的想法。它还具有处理体育,学校,外地旅行,派对和各种其他典型的“孩子的提示。
These titles aren’t specific to UC but can be enjoyable books. They’re great for anyone keen to learn more about the digestive tract and gut microbiome, and they can help you better understand how your body works.
‘Gut: The Inside Story of Our Body’s Most Underrated Organ’
By Giulia Enders
这is an engaging and easy-to-understandbook对消化系统的奥秘。的一个uthor, Giulia Enders, is a German scientist who has done a TED talk on the same topic.
Your gut is full of messengers that communicate directly with your brain. More and more research is being done on the connection between gut health and overall health.
这book answers questions you may not even know you have about the digestive system.
“跟随你的肠道:微小微生物的巨大影响
By Rob Knight and Brendan Buhler
这is a quick but fascinatingread,基于Rob Knight 2014 TED谈论同名。这完全是关于身体的微生物组,对我们的健康的影响。
你的肠道微生物组是由细菌和其他居住在你身体上的微生物的菌落组成的。大多数人住在你的肠道里,被称为你的肠道微生物队。
There’s ongoing research into how your gut microbiome is connected to your overall health, with links to mood, weight, and a variety of health conditions. There’s a small mention of IBD in the book, but otherwise, it’s an overview of gut health.
You’ll enjoy this if you want to learn more about the future of things like fecal transplants or the use of probiotics.
有几本伟大的书籍可以有关于UC的。他们可以帮助您了解更多关于UC的生活良好的各个方面。它们涵盖治疗,药物,照顾您的心理健康和饮食。
在寻找关于UC的书籍时,选择由一个处于条件的专家的人写的一个好主意。这可能是与拥有UC或与IBD一起生活的人的人合作的人。
如果您对您阅读的任何内容有疑问并确定您的最佳管理计划,请与您的医疗保健团队交谈。