Protect yourself

If you havelupus,保护自己免受阳光暴露是管理状况的重要组成部分。许多患有狼疮的人会经历光敏性或对阳光的异常敏感性。这会触发皮疹,瘙痒和灼伤等症状。过多的阳光暴露也会引起全身性狼疮的耀斑,引发诸如关节疼痛,无力和疲劳之类的症状。在某些情况下,它甚至会导致内脏器官损坏。

Ultraviolet (UV) light is a type of invisible radiation that’s present in sunlight. There are three types: UVA, UVB, and UVC. According to research published in 自身免疫评论 , UVB rays seem to cause the most problems in people with lupus. UVA radiation can also contribute to symptoms.

If you have lupus, exposure to sunlight may trigger symptoms such as:

  • lupus rash or lesions
  • 疲劳或无力
  • joint pain
  • 内脏器官肿胀

To protect yourself from UV radiation, wear sun protective clothing that reflects or absorbs sunlight before it reaches your skin.

UV rays can pass through thin, light-colored, and loosely woven fabrics. For optimum protection, wear tightly woven, dark-colored, long-sleeved shirts and pants, as well as wide-brimmed hats. Certain types of fibers also provide more protection than others. Unbleached cotton absorbs UV rays, while polyester and silk with a high sheen reflect UV radiation. You can also find high-tech “防晒衣服” designed to block UV rays at many sporting goods stores.

Sun protective clothing has a rating, known as its ultraviolet protection factor (UPF). This denotes the amount of UV radiation absorbed by its fabric. Look for clothing that’s labeled with a UPF of 25 to 50 or higher.

Sun protective clothing can lose its effectiveness when it’s stretched, weathered, or over-washed. Be sure to take proper care of it and replace it when it wears out.

除了穿防护服,还覆盖裸露的皮肤sunscreen。Look for sunscreen that:

  • 具有30或更多的防晒系数(SPF)
  • provides broad spectrum protection, blocking UVB and UVA rays
  • 包含物理阻滞剂,例如氧化锌和二氧化钛
  • is hypoallergenic

测试皮肤斑块上的防晒霜,以检查是否有敏感性或过敏反应的迹象。将其存放在凉爽的地方,并在一年后将其扔掉。随着时间的流逝,何时暴露于热量时,防晒霜会变得降低。

前出门前约30分钟,涂防晒霜。确保涵盖易于失误的区域,例如:

  • the middle of your back
  • 脖子的侧面
  • your temples
  • 你的耳朵

如果您的涂抹太薄,您的防晒霜将无法提供其SPF评级所示的保护。根据皮肤癌基金会的说法,您应该使用大约一盎司的防晒霜或一个装满射击玻璃来覆盖身体。

当您在外面度过时光时,重新涂抹防晒霜。每两三个小时至少添加一次新外套。如果您在游泳或大量出汗,可能需要更频繁地重新涂抹。

不要被雾或云的愚弄:在凉爽和多云的天气中,紫外线仍然可以很强。

为了保护自己免受紫外线辐射的侵害,请避免在最强时避免阳光。例如,在上午10点至下午4点之间留在室内。如果您必须出去,请留在树木,雨伞或遮阳篷的阴影中。在您的房屋和车窗上安装太阳护罩也可以提供所需的紫外线保护。

Phototoxicity is a dangerous reaction that can happen when light and certain chemicals combine. For example, phototoxic reactions can occur when your skin is exposed to sunlight after you take certain medications. These medications include certain:

  • 抗生素,例如阿奇霉素
  • nonsteroidal anti-inflammatory drugs (NSAIDs), such as diclofenac
  • 利尿剂
  • 口服糖尿病药物
  • 心脏药物

与您的医生交谈,以了解您服用的任何药物是否可能引起问题。

It’s not just sunlight you need to guard yourself against. For people with lupus, artificial light with UV rays can also cause problems. Sources of this light include:

  • 荧光灯
  • 复印机
  • 晒黑床

Limit or avoid exposure to these artificial light sources. Avoid tanning beds altogether, since they could worsen your condition.

有关治疗和管理狼疮的更多有用信息,请访问以下链接。