Getting married was always something I had hoped for. However, when I was diagnosed with lupus and rheumatoid arthritis at the age of 22, marriage felt like it might never be attainable.
谁知道是由多种慢性疾病复杂的生活的一部分？谁想发誓“在疾病和健康中”，而不是一个假设的想法？谢天谢地，虽然直到我的30多岁，但我发现了我的那个人。
即使你不长期生病，也规划婚礼也可能是一种压力的体验。所有新娘都有担心他们的婚礼当天。
Will I find the perfect dress and will it still fit on the day of the wedding? Will the weather be good? Will our guests enjoy the food? Will they appreciate all the personal details that we included in our somewhat non-traditional wedding?
And then there are the fears that a bride with rheumatoid arthritis has on their wedding day.
我觉得相当好,能走吗the aisle pain-free? Will I have enough energy for the first dance and to greet all of our guests? Will the stress of the day send me into a flare?
我自己自己生活了，我已经获得了一些关于一些挑战，陷阱和乐于患有慢性疾病的人的挑战和乐于助人的行动。这里有10件事要记住。
你会得到很多未经请求的建议，但你必须为你做适合的事情。我们婚礼上有65人。我们做了对我们有效的事情。
有时我质疑我们是否应该只是因为来自他人的所有噪音而不是Elope。无论如何，爱和支持你的人会在那里，所以如果人们会抱怨，让他们。你将无法取悦每个人，但无论如何都不是关于他们的。
我们几乎自己做了一切，从采摘和发送邀请函以准备场地。我是'类型A'，所以这部分是我想要它的方式，但这是很多工作。我们有一天的协调员，谁在那里就在那里让我们走向我们，这是关于它的。
我的妈妈和我的一些好朋友借了一只手，帮助我们在婚礼前一天晚上设立场地。这是一个很好的债券和花时间在一起的方式，但它也意味着我有人能够依靠我的愿景，如果没有我自己做的事情 - 而不必支付某人这样做。
你不想被所有计划都筋疲力尽，你不能享受实际的婚礼。我非常组织，并试图提前检查清单的东西，以便在最后一分钟后留下了什么。
去年夏天我在两个婚礼上。当我开始准备好赛事结束时，一个好的16个小时过去了。
对于我的婚礼，我们开始在上午8点准备好的准备，仪式在下午12点，事情开始蜿蜒下午3点。当清理时，我被删除了。
即使您可能有时间休息，避免安排婚礼周的一群医生约会。我以为我正在努力学下工作时聪明，但它只是不必要的。
There’s so much you’re going to need to do before your wedding. Unless you have a reason to see your doctor or doctors, don’t push yourself. So much of chronically ill life is already filled with appointments.
While there should be plenty of smooching on your wedding day, that’s not what I mean. Rather, “Keep It Simple, Stupid!”
Along with having a small wedding, we had a small wedding party. My sister was my Maid of Honor and my groom’s brother was the Best Man. That was it.
It meant we didn’t have to organize tons of people, we didn’t have a rehearsal dinner, and it just made things easier. We also had the ceremony and reception at the same place so we didn’t have to travel anywhere.
I had two pairs of shoes for the big day. The first was a fancy pair of heels that I wore to walk down the aisle and that I knew I would have to take off immediately after the ceremony. The other was a casual pair of cute pink sneakers that I wore the rest of the time, including during our first dance.
每个人都希望他们的婚礼是完美的，但如果有一件事有慢性疾病的人知道，事情并不总是按计划进行。
Your wedding day is no exception, no matter how much you plan. We had an issue with the sound system at our venue. It could have been devastating, but I don’t really think anyone noticed.
在结婚的想法和婚礼当天的想法中，很容易扫除，特别是如果你担心它可能永远不会发生。但现实是，婚礼本身只有几个小时的生活在一起。
If you focus on your own needs and plan ahead, your wedding day will ultimately turn out to be that day you dreamed of — one you’ll never forget. For me, it was blissful. Sure, I was still exhausted by the end of it, but it was worth it.
莱斯利罗斯Welsbacher was diagnosed with lupus and rheumatoid arthritis in 2008 at the age of 22, during her first year of graduate school. After being diagnosed, Leslie went on to earn a PhD in Sociology from the University of Michigan and a master’s degree in health advocacy from Sarah Lawrence College. She authors the blog靠近自己，她分享了她的经历，与多种慢性疾病，坦率和幽默服用。她是一名专业患者倡导生活在密歇根州。