I think it’s safe to say we all love gifts that make our lives easier and less painful.
如果你在网上搜索思想智慧的人的礼物h psoriatic arthritis (PsA), you’ll find the same suggestions again and again — compression gloves, weighted blankets, pillows, and heating pads.
这些产品可能有助于减轻疼痛,但首先没有做太多防止疼痛。
Here are eight life-changing and pain-preventing gifts that have made my life with PsA easier to manage!
Lower back and shoulder pain forced me to give up vacuuming within a year of receiving my PsA diagnosis.
我曾经很感激,以至于我的丈夫无需抱怨就接管了这项琐事,但仅他的合作还不够。他经常旅行,这意味着他并不总是在家清洁我们房屋的地毯区域。
我们的机器人真空消除了我们的肩膀。
My husband still has to do a thorough vacuuming by hand now and then, but he’s not left with weeks’ worth of dog and cat hair to contend with.
多年来,我不得不依靠丈夫打开罐子,尽管我可以用手动罐打开罐子,但这并不总是那么容易。
电子罐子和开瓶器have been a game changer! No more having to wait for my husband to get home or torture my already aching hands.
When a flare stops me from sleeping, the last thing I want to do is to wake my husband. So I throw on wireless headphones and stream my favorite shows on my tablet. It puts a world of entertainment at my fingertips, without disturbing anyone else.
Another advantage of watching shows on my tablet is that I can view it from any position I choose. When I’m watching a television that’s fixed in place, I can’t always find a comfortable position to watch in.
我喜欢阅读,但是我的手并不总是能拿着书或平板电脑。
那就是虚拟助手派上用场的地方!我的名字叫Alexa。她可以向我大声朗读电子书和文章,而我的手,脖子和眼睛休息。
My virtual assistant is also great at making lists. Instead of sitting down and trying to remember everything I need from the pharmacy or grocery store, I simply ask her to add each item to my list when I notice we need it.
我还可以设置虚拟助手,以提醒我何时需要服药,运动或吃饭。这些提醒是无价的,尤其是当大脑雾击中时。
PSA耀斑导致我的内部温度计会发干 - 因此,我不能仅将恒温器设置在一个温度下并将其留在那里。
使用标准和可编程的恒温器,我必须起床并改变温度或沮丧地等待我的身体调节自身。
Now we use a Wi-Fi thermostat instead. It allows me to adjust the temperature without getting up at all.
当我经历严重的爆发时,我丈夫回家并在黑暗中等待的情况并不少见。有时,它只是站起来并步行到电灯开关的痛苦太大。
我丈夫建议我们购买无线插头和灯开关。使用我们的家庭互联网连接,我可以要求我的虚拟助手打开和关闭灯,而不会增加脚,臀部或手的疼痛。
这不仅给了我预防疼痛的礼物,而且还帮助我保持了我在爆发时可能会失去的独立性。
语音激活的技术很棒,除非我是唯一的醒着。
As I make my way to the bathroom or kitchen late at night or early in the morning, I don’t want to wake my family by talking to my virtual assistant.
这就是为什么要进行运动激活的夜灯很有帮助的原因。他们点燃我的路,并帮助我避免绊倒,而不必说话或失败以进行轻型开关。
当我处于耀斑之中时,我们的相机和安全系统让我在不离开床或沙发的情况下与我家门口的任何人交谈。
每次都不必物理地回答门,就可以节省我的身体很多痛苦。这也有助于给我加重压力。
一天晚上,我们的相机在门口录制了一个男人,他们在家中听了我们家中的活动,并试图窥视我们的窗户。通过演讲者,我问他想要什么。他没有回应,而是逃跑了。
That’s the night I realized the difference that our security system made to my life with chronic pain. Although I was shaken up, my stress level was nowhere near as high as it would have been if the man had broken into our home.
When you have PsA, it’s not enough to treat pain after it occurs. To live well with this condition, we also need to find ways to prevent pain in the first place.
Each of the items in this gift guide has brought improvements to my life that might seem minor to someone who doesn’t live with chronic pain. But combined, those little things have made a big difference to my daily routine and pain levels — allowing me to do more.