My daughters are both toddlers, which is such an incredibly curious (and crazy) time in our lives. Living with psoriasis and parenting two inquisitive kids means that, naturally, they’ve pointed out my psoriasis (or ’riasis as they call it), wanting to know how I got my boo boos and how they can help make me feel better.
I’m constantly amazed by their empathy and nurturing tendencies at such a young age. We’re also in the “obsessed with Band-Aid stage of life” (yes, that’s a thing) so I’m constantly being offered “Boo Boo Bands” to put on my spots. It’s a funny visual to think about covering my entire body with “Frozen” movie-themed Band-Aids.
When I talk to them about my psoriasis, I keep it simple and honest. They know mommy has ’riasis and takes medicine to make it feel better. But we haven’t gotten into any of the nitty gritty about what it is or even the possibility that they might develop it one day because at this age, they really wouldn’t understand it.
随着他们的成长，谈话会改变和发展，我相信它最终会在公园里枢转到他们的朋友，同学或随机的孩子 - 我们会在我们到达它时越过那座桥梁。
If you’re curious about talking to your kids about psoriasis, here are a few of my tips to help guide that conversation.
Talk to your child in terms they can understand. For my toddlers, I might say “each spot is very itchy like a bug bite.” Or I explain that our skin grows just like our hair, but that my skin grows 10 times as fast as normal skin, so it builds up and that’s why you can see it flaking off sometimes.
Talk about your psoriasis and show them how you take care of psoriasis. For instance, my girls know I take a shot for it and that the shot hurts, but the medicine is helping my psoriasis get better (I think it’s also been really helpful for their own doctor’s visits!). They also help me apply lotion to my arms and legs to keep my skin moisturized — and with the amount they put on, it’s REALLY moisturized! They’ve seen firsthand how important it is to take care of your skin, and are even the first ones asking for sunblock when it’s time to go outside. I couldn’t be prouder!
从基础开始，让他们提问。孩子们渴望信息，让他们问！如果您开始进入自身免疫性疾病，更年轻的孩子将无法理解，但它可以是开始教育孩子造成的炎症的好时机。如果是你一个孩子的同学，你可能想向他们的父母联系，让他们了解谈话以及你所谈论的东西。
Let them know that it’s not contagious and they can’t catch it from you, like a cold or chicken pox. It’s also important to tell them that it’s not from bad hygiene or from anything bad you did.
Most of the time when kids are asking questions about psoriasis, it’s not from a malicious place — they’re just curious and genuinely want to know how they can help you. Having open and ongoing conversations with your kids about psoriasis helps them to better understand what it is, and they’ll enjoy the time you spend with them talking about it.
Joni Kazantzis.is the creator and blogger forjustagirlwithspots.com, an award-winning psoriasis blog dedicated to creating awareness, educating about the disease, and sharing personal stories of her 19+ year journey with psoriasis. Her mission is to create a sense of community and to share information that can help her readers cope with the day-to-day challenges of living with psoriasis. She believes that with as much information as possible, people with psoriasis can be empowered to live their best life and make the right treatment choices for their life.