Each person’s journey with多发性硬化症（MS）是不同的。当一个新的诊断离开你寻找答案时，最好的人可能是另一个人与你遇到同样的人。
Many organizations have created online resources for people with MS or their loved ones to seek help from around the globe. Some sites connect you with doctors and medical experts while others connect you with regular individuals like yourself. All can help you find encouragement and support.
Check out these seven MS support groups, forums, and Facebook communities that may help you find the answers you seek.
Our very ownMS社区页面allows you to post questions, share tips or advice, and interact with people with MS and their loved ones from around the country. From time to time we post anonymous questions submitted to us by Facebook friends. You can submit your own questions and use the answers provided by the community to help you live a better life with MS.
We also share medical research and lifestyle articles that can be useful to people with MS or their loved ones. Click这里喜欢我们的页面并成为Healthine MS社区的一部分。雷竞技app官网
Okay, it’s not really a website — it’s an app. ButMS Buddyis still a great resource! Compatible with iOS 8 or later (in other words, you need an iPhone, iPad, or iPod Touch), MS Buddy connects you directly with other people who have MS.
这个免费的应用程序向您询问有关您自己的几个问题，例如您的年龄，位置和MS的类型。然后，它与您有类似个人资料的其他人联系。如果您选择，您可以联系您与您匹配的用户。这是与那些获得与MS相处的人联系的好方法。谁知道，你可能会遇到你的下一个最好的朋友！
MS Worldis run by volunteers who have MS or have provided care for someone with it. The setup is very straightforward: MS World hosts several forums and a continuous live chat. The forums are centered on specific questions, including topics like “MS Symptoms: Discussing the symptoms that are associated with MS” and “The Family Room: A place to discuss the Family Life while living with MS.”
聊天室全天开放普通讨论。但是，当讨论必须与MS相关时，他们会在一天中的特定时间。
要参加聊天和其他功能，您可能需要注册。
The Multiple Sclerosis Foundation Facebook Groupharnesses the power of an online community to help people with MS. The open group currently has more than 21,000 members. The group is open for all users to post questions or offer advice, and users are able to leave comments or suggestions for everyone to see. A group of site administrators from the Multiple Sclerosis Foundation also steps in to help you find experts when needed.
美国多发性硬化症协会（MSAA）runs a free online community. My MSAA Community allows people with MS, their families, and their care partners to share information and experiences about living with multiple sclerosis.
通过加入社区，您可以与受MS影响的其他人联系，促进开放论坛的持续对话，并开始与问题或帖子的对话或关于您的旅程的帖子。
MS Lifelines.是一个有女士个人的Facebook社区。社区支持MS LifeLines对等匹配计划，该计划将个人与MS与生活方式和医疗专家联系起来。这些同行可以指出研究，生活方式解决方案，甚至是营养建议。
MS Lifelines由MS药物制造商的EMD Serono Inc.经营Rebif.
像我这样的患者将有MS和他们所爱的人的人互相连接。像我这样的患者的一个独特的方面是，与MS的人们可以追踪他们的健康。通过多种在线工具，您可以监控您的健康和MS的进展。如果您愿意，研究人员可以使用这些信息来创造更好，更有效的治疗方法。您还可以与其他社区成员分享此信息。
像我这样的患者isn’t built just for people with MS: It has features for many other conditions, too. However, the MS forum alone has more than 74,000 members. These members have submitted thousands of reviews of treatments and completed hundreds of hours of research. You can read all about their experiences and use their insight to help you find the information you need.
As with any information you find online, be sure to be careful with the MS resources you use. Before exploring any new treatments or stopping current ones based on advice you find online, always talk with your doctor first.
也就是说，这些在线特征和论坛可以帮助您对究竟知道您要经历的其他人，他们是医疗保健提供者，亲人，照顾者或其他人的人。他们可以回答问题并为支持提供虚拟肩部。
You’ll face a range of challenges living with MS — mental, physical, and emotional — and these online resources can help you feel both informed and supported as you strive to live a healthy, fulfilling life.