当你有囊性纤维化时，它仍然可以怀孕并携带婴儿。但是，您需要在这九个月内密切监测，以确保您和您的小一部分保持健康。

为了给自己获得成功怀孕的最佳机会，在你试图怀孕之前看到一个高风险的产科医生。

这个专家意志：

  • evaluate your health
  • determine whether it’s safe for you to get pregnant
  • guide you through pregnancy

You’ll also work closely with the pulmonologist who treats your cystic fibrosis throughout your pregnancy.

Here’s a preview of what to expect as you begin planning a family.

在怀孕期间，您的囊性纤维化症状可能会变得更糟。生长的婴儿可以对肺部压力施加压力，并使呼吸困难。便秘在患有囊性纤维化的女性中也很常见。

其他囊性纤维化妊娠并发症包括：

  • 早产。这是当你的宝宝出生在怀孕37周之前。天生过早的婴儿面临着呼吸困难和感染等并发症的风险。
  • Gestational diabetes.这是母亲在怀孕期间患有高血糖的时候。糖尿病可能会像肾脏和眼睛一样损伤器官。它也可能导致发展中的婴儿的并发症。
  • High blood pressure (hypertension).This is increased resistance due to stiffer blood vessels. When blood pressure is high during pregnancy, it can reduce blood flow to your baby, slow your baby’s growth, and lead to premature delivery.
  • Nutritional deficiency.这可以防止宝宝在子宫内生长。

There’s a possibility you could pass cystic fibrosis to your baby. For that to happen, your partner also needs to carry the abnormal gene. Your partner can get a blood or saliva test before you conceive to check his carrier status.

在怀孕期间，这两个产前试验寻找最常见的基因突变。他们可以展示你的宝宝是否有囊性纤维化或携带一种已知的基因突变引起囊性纤维化：

  • Chorionic villus sampling (CVS) is done between the 10th and 13th weeks of pregnancy. Your doctor will insert a long, thin needle into your belly and will remove a sample of tissue for testing. Alternately, the doctor can take a sample using a thin tube placed into your cervix and gentle suction.
  • 羊膜穿刺术是在怀孕的第15和第20周之间进行的。医生将一根薄的空心针插入腹部，从宝宝周围移除羊水样品。实验室然后测试液体进行囊性纤维化。

These prenatal tests can cost a few thousand dollars, depending on where you have them done. Most health insurance plans will cover the cost for women over age 35 and for women with known risks.

一旦你知道宝宝是否有囊性纤维化，你可以决定怀孕的未来。

A little bit of planning and extra care during your pregnancy will help ensure the best possible outcome for both you and your baby. Here are a few things you can do.

Eat right

囊性纤维化使得在怀孕期间更难以获得适当的营养。当你吃两次时，你会获得足够的卡路里和营养素更为重要。

Your doctor may recommend starting your pregnancy with a body mass index (BMI) of at least 22. If your BMI is lower than that, you may need to increase your calorie intake before you conceive.

Once you’re pregnant, you’ll need an extra 300 calories daily. If you can’t reach that number with food alone, drink nutritional supplements.

Sometimes severe morning sickness or cystic fibrosis can prevent you from getting enough calories to meet your baby’s needs. In this case, your doctor might suggest getting your nutrition intravenously. This is called parenteral nutrition.

Here are a few other nutritional tips to follow during your pregnancy:

  • Drink lots of water, eat more fruits and vegetables, and add fiber to your diet to prevent constipation.
  • 确保你得到足够的叶酸，铁和维生素D.这些营养素对宝宝的发展至关重要。有时患有囊性纤维化的人不会得到足够的。

锻炼

身体活动对于让您的身体造型来说是重要的，以便送货，并保持肺部健康。您的医生可能会建议您进行特殊练习，以加强帮助您呼吸的肌肉。首先与您的医生联系，您所做的练习对您来说是安全的。

Also, consult a dietitian before you start any new exercise program. You need enough nutrition to support your increased calorie requirements.

Other tips to ensure a healthy pregnancy

See your doctors often. Schedule regular prenatal visits with your high-risk obstetrician, but also continue to see the doctor who treats your cystic fibrosis.

监控你的健康。如果您拥有它们，请保持糖尿病和肝病等条件。如果您不对待它们，这些疾病会导致妊娠并发症。

留在你的药物。除非你的医生pecifically told you to stop a medication during pregnancy, take it regularly to manage your cystic fibrosis.

Medication is a necessary part of managing cystic fibrosis. The good news is, most medications that treat the condition are considered safe for your baby.

However, there are a few drugs you should use with caution. There’s a slight chance they could increase the risk of birth defects or other problems in your unborn baby. Drugs to watch include:

  • 抗生素等环丙沙星（Cipro），克拉霉素，乳霉素，强霉素（oracea，targadox），庆大霉素（Gentak），iniipenem（primaxin iv），梅洛涅姆（merrm），甲硝唑（Metrocrocam），甲苯胺唑（Metrocrocam），利福平（步法蛋白），三甲双胍 - 磺胺甲恶唑（Bactrim），万古霉素（昆腾）
  • 像氟康唑（Diflucan），昔昔尔（Zirgan），伊丙康唑（Sporanox），Posaconazole（Noxafil），伏立康唑（VFEND）等抗真菌药物
  • Acyclovir（Zovirax）如抗病毒药物
  • 双膦酸盐加强骨骼
  • 囊性纤维化药物，如IVACAFTOR（KALYDECO）和Lumacaftor / Ivacaftor（Orkambi）
  • Ranitidine（Zantac）治疗胃灼热和胃食管反流
  • transplant medications to prevent rejection, such as azathioprine (Azasan), mycophenolate
  • ursodiol (URSO Forte, URSO 250) to dissolve gallstones

Talk to your doctor if you take any of these medications. You’ll need to weigh the benefits and risks of staying on any drugs that could cause problems during pregnancy. Your doctor may be able to switch you to an alternate drug until you deliver.

大多数有这种情况的女性都可以怀孕，但它可能需要比平时更长。囊性纤维化在整个身体中增稠粘液 - 包括宫颈中的粘液。更厚的粘液使男人的精子越难进入子宫颈并施肥鸡蛋。

营养缺陷也可以防止您定期排卵。每次排卵时，你的卵巢都会释放鸡蛋进行施肥。如果没有每个月到位的鸡蛋，你可能无法容易地设想。

If you’ve tried for several months to get pregnant, but you haven’t been successful, talk to a fertility specialist. Medications to increase your egg production or assisted reproductive technologies such as in-vitro fertilization may improve your chances of conceiving.

患有囊性纤维化的男性缺乏或在管中堵塞，携带从睾丸中的精子到尿道射精。因此，大多数人无法自然怀孕。

They and their partner will need IVF to conceive. During IVF, the doctor removes an egg from the woman and sperm from the man, combines them in a laboratory dish, and transfers the embryo into the woman’s uterus.

在开始IVF之前，与治疗囊性纤维化的医生交谈。您可能需要调整您的治疗，因为囊性纤维化会影响IVF所需的激素的吸收。

囊性纤维化不应该阻止你开始一个家庭。怀孕可能只是额外的准备和关怀。

一旦你想象，就与高风险产科医生和治疗囊性纤维化的医生密切合作。在怀孕期间，您需要良好的保健，以确保您和宝宝的最佳结果。