- 尼克乔纳斯于13岁被诊断出患有1型糖尿病,正在帮助提高对该病症的认识,并努力帮助患有糖尿病患者最快乐和最健康的生活的人。
- Jonas joinedThe Global Movement for Time in Rangeto talk about the benefits of time in range, which is the duration of time during which a person’s glucose levels are in the goal range.
- New diabetes management technologies can help people living with diabetes monitor it more accurately than ever before. However, many people are still unable to access it.
2005年,流行明星尼克乔纳斯是13岁,当他降落在医院时,他的乐队唱着他的乐队。
“实际上,我非常糟糕。我在2周内丢失了大约20磅。我不能喝足够的水,一直都去洗手间;非常易怒,这是一种高血糖的症状,“他讲述了健康的线条。雷竞技app官网
当医生发现他的血糖水平超过900mg / dl时(考虑小于140 mg / dl
“That was alarming and the start to my life with this disease. It’s pretty wild to think back that had it gone untreated just a few more days, it could have been really, really bad, but I got the care I needed when I needed it,” Jonas said.
A few days after his hospital stay, he was back on tour performing with his brothers.
“我一直非常坚定和热情地对我所做的工作。这是一种可怕的现实,我不得不面对,但不是我要去的东西,一秒钟,让它放慢我,“他说。
In addition to the support of his friends and family, Jonas credits the care of doctors and innovations in diabetes management tools for helping him move forward.
“I think technology is incredibly important when it comes to life with diabetes, and it is a pretty crazy thing to think that even in my 16 years as a type 1 diabetic, how much has changed and how far the tech has come,” Jonas said.
乔纳斯与之合作The Global Movement for Time in Range, an initiative that aims to accelerate the adoption of time in range as an important metric in diabetes management.
Minisha博士康德, endocrinologist at Lenox Hill Hospital in New York, explained that time in range is the duration of time during which a person’s glucose levels are in the goal range.
“我们知道,范围内的升高时间降低了血红蛋白A1C,较低的A1C与糖尿病的并发症减少有关,”Sood告诉Healthine。雷竞技app官网“大多数健康从业者和患者使用A1C来衡量某人的葡萄糖控制,但范围内的时间和使用血糖变异性是给我们整个画面的重要工具。”
For Jonas, time in range has been a helpful metric.
“Life-changing, in fact, to have a better sense where I’m at and where I’m headed in real time, and a bigger, broader view of my life with diabetes and how to live my happiest and healthiest life,” he said.
乔纳斯最近发现,他的A1C是自收到他的诊断以来最好的,并且距离的时间是原因的一部分。
By joining The Global Movement for Time in Range, he hopes to raise awareness for the need for greater global access to diabetes technology that can measure time in range.
除了倡导改善对糖尿病护理的进入之外,在11月期间,Jonas正在使用他的Instagram通过在糖尿病周围的世界各地的人们兴奋地拥有鼓舞人心的故事来帮助世界#Seediabetes。
He’ll also speak candidly about his own diabetes journey on Nov. 16 — the anniversary of his diagnosis.
“What’s interesting about diabetes is that it affects so many people, not just the individual themselves, but their friends, family… should someone see something on my channel whether they are diabetic or not and being able to share that with someone they know who lives with the disease, is a really interesting and exciting thing to get to do,” Jonas said.
In 2020, The Global Movement for Time in Range conducted a survey of people with insulin-treated diabetes.
The survey found that 84 percent of respondents with insulin-treated diabetes believe they deserve the most cutting-edge technology available to manage their disease. However, many are still unable to access it.
“患有糖尿病的服务不足和被忽视的个体无法获得最佳的药物和设备,知识渊博的[医疗保健专业人员],适当的教育和支持,”史蒂文·埃德尔曼博士, professor at the University of California, San Diego, told Healthline. “We really need to do something to help these people living with diabetes and their family members.”
Sood同意,并指出与印度人生活betes constantly fight against increasing costs of supplies and medications used to manage their condition.
“They also struggle to gain access to the new and breakthrough medications due to high cost and other factors. When people with diabetes are hospitalized, they often must advocate for themselves because in-hospital diabetes management is woefully inadequate, generally speaking,” Sood said.
通过与范围内的全球运动的组合,乔纳斯旨在帮助人们了解他们应该得到充分的照顾,并希望他们能够妥善管理他们的病情。
“When I was diagnosed, being in the hospital was bleak and honestly overwhelming and scary,” he said.
乔纳斯相信如果他听到他是一个粉丝或抬头谈论与糖尿病生活的粉丝,它可能会产生正常的经验。
He hopes to help his fans in this way.
“I think the encouraging thing for them to know is that this is a manageable disease, and there may be a bump along the way, but you can do it,” Jonas said.
“如果你可以从自己身上避免压力,让自己继续这一旅程,每天都能做到最好,那就是这一切都很重要,”他说。